Monday, May 23, 2016

"Reality Used To Be A Friend of Mine"

A moment captured.  About a week ago I spent another six days in the hospital.  This was a little over four weeks after my last nine day stint.  My eyes cloudy.  You can see the tubing from the PICC line in my right arm.  After all these years my veins don't work.  Literally, my veins cannot support an IV.  And it usually takes multiple people, multiple attempts to even find a vein that will work for a short amount of time.  (This is a topic that I plan to go into great detail on in the future) I was going to post some of the actual journal entries from this particular hospital stay but they're kind of all over the place.  And like I said, I am severely private, so this whole sharing thing is VERY outside of my comfort zone.  Although, I don't know much about "comfort" anymore.  I guess that's why I finally decided to do this...
     So, I begin with this glassy-eyed sad photo of blinds drawn and palm trees in the distance.  I can't decide how I feel about the palm trees.  They remind me of the beach and being happy and healthy playing in the sun.  So, are they taunting me? Are those trees mocking my "old life"...You know, the life where I was happy and healthy and didn't turn my back...? Or are those trees there to remind me of that happiness and the hope of returning to a life where I am happy and healthy? Perspective.  Mother Fucker. 

Tuesday, May 10, 2016

Letting Go...

I've been secretly documenting my 21 year battle with Crohn's disease.  It may be time to share some of it...?  If I can help someone than all of this suffering will begin to change form. It could turn into something useful instead of just ruining what life I have left.  It's frightening to be so vulnerable.  If you scroll through any of your social media feeds 99% of it is the positive, happy, fakeness that people want others to believe is their reality.  Well, let's be honest for a moment, NO ONE has a happily-ever-after life.  No one.  So with the risk of sounding like a whiner or a "why me" asshole I am going to attempt to put my ordeal out there.  Honestly, it's terrifying!  I am a SEVERELY private person! However, through all of this there has to be a purpose.  So maybe in putting it out there I will find what it is... And I know there are others like me barely holding on.  Maybe together we can do it... This is all I hope for...